Fibromyalgia

It’s tricky // Part 2

https://youtu.be/l-O5IHVhWj0 Chronic illness is tricky, you never know what’s going to happen Thora Allan The 2023 chapter of Fibromyalgia has been very different from anything I have experienced since my diagnosis 12 years ago. My health has been exceptional. I’ve gone from screaming into my pillow at night, in tears from the relentless pain, wishing… Continue reading It’s tricky // Part 2

Fibromyalgia

I’m right over here, why can’t you see me? I keep dancing on my own

My interpretation…. I think about those who left, friends no longer able to see me. The real me lost in the fog of chronic illness. All they could feel was pity, all they could do was judge. I was still me. I just got ill. I didn't ask for it, I didn't cause it, I… Continue reading I’m right over here, why can’t you see me? I keep dancing on my own

diagnosis, Fibromyalgia

When the party’s over

If you entrust your data to others, they can let you down or outright betray you. Jonathan Zittrain Receiving my Fibromyalgia diagnosis did indeed feel like “the party was over” looking back on it. It was. It still is to some extent. Finally, It was confirmed after 3 years of declining health. Initially, I felt… Continue reading When the party’s over

Fibromyalgia

“Let us make hay while the sun shines.”

“Let us make hay while the sun shines.” — Miguel de Cervantes Saavedra The weekend I just had was far from typical. I managed to have a “real” weekend, you know, like “normal” people do. My health has improved dramatically over the past few weeks. Why? I don’t know. For how long? I don’t know.… Continue reading “Let us make hay while the sun shines.”

chronic fatigue, Chronic illness, Fibromyalgia, invisible illnesses, Job interview, life lessons, Orkney Fibromyalgia, presentation

It ain’t about how hard you get hit or how many times you get knocked down. It’s about how hard you can get hit and keep moving forward.

Rocky said: "Let me tell you something you already know. The world ain't all sunshine and rainbows. It's a very mean and nasty place and I don't care how tough you are it will beat you to your knees and keep you there permanently if you let it. You, me, or nobody is gonna hit… Continue reading It ain’t about how hard you get hit or how many times you get knocked down. It’s about how hard you can get hit and keep moving forward.

Fibromyalgia, pain, Trauma

I feel like I have no value

I'm not one of those people who have others there for me. I'm one of those people who are there for everyone else. I'm loyal, dependable, trustworthy and empathetic to a fault. Nobody who comes into my life stays. They take what they can for as long as they can until they've had enough and… Continue reading I feel like I have no value

Fibromyalgia, life lessons, Trauma

What was I made for?

I’ve never really felt like I had a purpose or a place in life and definitely not in the lives of others. Humans are social creatures, we strive for human connection and contact. I’m no different. I just don’t fit for some reason. I’m only ever temporary. I’m ok with that. It doesn’t stop me… Continue reading What was I made for?

chronic fatigue, Chronic illness, Chronic pain, Fibromyalgia, life lessons

Let go

Today, I Choose to Let Go. I must remind myself every day. “Let them go, Thora, Let them go”. I choose to let go of the people who have already let go of me. “But you love them Thora, yes I do and that’s why I must let them go”. They let go and left… Continue reading Let go

Fibromyalgia, life lessons, loneliness, pain, Trauma

Porridge

I saw this and it made me feel so sad inside. It reminded me of every time I've raised my head above the parapet to express my feelings towards someone about my struggles with them and their behaviour. It's always ended up with me being left out in the cold. It made me vow never… Continue reading Porridge